This Guidance helps nonprofit research institutes build a modern data sharing portal. Nonprofit funders seek data sharing policies that will give them visibility into a nonprofit’s goal progress and output. In addition to funders, agencies are starting to require researchers to share data with research participants and communities. In January 2023, the US National Institutes of Health (NIH)* announced that most of the 300,000 researchers and 2,500 institutions that the NIH funds annually will need to include a data management plan in their grant applications and eventually make their data publicly available. This Guidance can help nonprofits achieve this goal by showing how funders can add to the raw data that nonprofit researchers use and how these researchers can share their findings with research participants and communities.
